Julie Beckett is the parent of Katie Beckett, a young girl from Iowa who was the recipient of the very first Medicaid Home and Community Based Services waiver, granted by the Secretary of Health and Human Services in 1981. In the years since, the “Katie Beckett waiver” has had a profound impact on the lives of individuals with disabilities and their families by enabling children and adults to remain in their homes and receive services, avoiding institutional care settings. Currently, there are over a million people receiving services under these HCBS waivers.
Julie is an active child and family advocate on the national scene. She is co-founder of Family Voices, a national grassroots organization of family advocacy organizations acting on behalf of, and with, children and youth with special health care needs. She is a parent consultant to the National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention, and widely recognized as a strong and respected voice for Medicaid advocacy. She has also published numerous articles, and written a book entitled “Health Care Financing: A Guide for Families.”
Sadly, Katie Beckett passed away on May 18, 2012. Nonetheless, Julie continues to carry on with her advocacy in Katie’s memory.
Raising Special Kids, as Arizona’s chapter of Family Voices, is exceptionally proud to host this exemplary parent leader.